Rare Disease Advocacy - National Organization for Rare Disorders

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Understanding Rare Disease
- - Where to start
    Rare Disease Facts and Statistics
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    Stories That Inspire
    A Podcast For The Rare Disease Community
    Rare Disease Day
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- - Patient stories
    Christina’s Lease on Life
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Living with a Rare Disease
- - Manage your care
    Getting Help & Support
    Managing Your Disease
  - We can help
    How NORD Can Help
    Speak To Someone at NORD
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- - You Are Not Alone.
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Community Support
Advancing Research
Driving Policy
- - NORD policy and you
    Public Policy Positions
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    Policy Steering Committee
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    NORD’s State Report Card®
  - Taking action
    Join the Rare Action Network®
    Become a State Ambassador
    Take Action on Key Issues
- - Join A Current Campaign.
    Changing lives of those with rare disease.
    Learn More
Get Involved
- - Raising awareness and funds with NORD
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    Attend An Upcoming Event
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National Organization for Rare Disorders (NORD)

1900 Crown Colony Drive
Suite 310
Quincy, MA 02169
Phone: 617-249-7300

Other Locations:

Danbury, CT office
55 Kenosia Avenue
Danbury, CT 06810
Phone: 203-263-9938
Fax: 203-263-9938

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1779 Massachusetts Avenue
Suite 500
Washington, DC 20036
Phone: 202-588-5700

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NORD is a registered 501(c)(3) charity organization.
Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

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