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Archives for: April 28th, 2021

World Orphan Drug Congress 2021

Written by Valaree DonFrancesco on April 28, 2021

Join over 1,000 rare disease stakeholders virtually at the World Orphan Drug Congress on Wednesday, April 28, 2021. The conference has over 50 speakers, including NORD’s President and CEO Peter L. Saltonstall, tackling topics on advanced therapies, clinical development, rare disease advocacy, and more.

Register for your free pass today: Read More

NORD Invites Video Submissions on Advocacy Experience

Written by Lisa Sencen on August 1, 2018

Washington, D.C., August 1, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has issued a call for video submissions on the patient advocacy experience. The videos will be the latest part of a year-long campaign marking… Read More

NORD Reaction to Recently-Enacted Government Spending Bill

Written by Lisa Sencen on March 29, 2018

After months of debate, Congress passed an omnibus spending bill last week to fund the government through September 30, 2018. Within this legislation, there are both exciting investments in critical programs for the rare disease community as well as disappointing policy omissions from the final package.

For example, we had greatly… Read More

Your Help is Needed to #SaveCHIP

Written by Lisa Sencen on January 10, 2018
Today, advocates across the country are joining together to #SaveCHIP!
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