Scroll
To Top

Archives for: July 15th, 2016

Advocacy Alert: Illinois Rare Disease Commission Bill

Written by Heidi Ross on July 15, 2016

HDR_PolicyAlert_2

UPDATE:  July 11, 2016

Illinois HB 4576 is close to passing!  This bill would establish a Rare Disease Commission that would give patients – many of whom are too young or sick to speak for themselves – a voice in the state government.  The… Read More

Miss Iron County Supports Rare Disease Advocacy and Awareness

Written by Lisa Sencen on July 28, 2015

Recently, NORD was happy to receive a Facebook message from a young woman named Angelia Benson. She expressed interest in using NORD’s logo in a parade as part of her competition to become Miss Utah.  We were thrilled to learn that Angelia, who is the reigning Miss Iron County Utah,… Read More