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Archives for: February 9th, 2022

Rare Disease Day: Bradley’s Story

Written by Maia Craig on February 9, 2022
A photo of Bradley wearing a blue and white shirt and mint green shorts

Leading up to #RareDiseaseDay on February 28, NORD is sharing stories from patients and caregivers impacted by rare disease. This week, we are sharing Bradley’s journey with Infantile Myofibromatosis. If you want to share your rare story in honor of Rare Disease Day, visit NORD’s Read More

Miss Iron County Supports Rare Disease Advocacy and Awareness

Written by Lisa Sencen on July 28, 2015

Recently, NORD was happy to receive a Facebook message from a young woman named Angelia Benson. She expressed interest in using NORD’s logo in a parade as part of her competition to become Miss Utah.  We were thrilled to learn that Angelia, who is the reigning Miss Iron County Utah,… Read More