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Archives for: June 3rd, 2020

A Celebration of NORD’s 35th Anniversary

Written by Lisa Sencen on May 31, 2018

On Thursday, May 17 at the Andrew W. Mellon Auditorium in Washington, D.C. the rare disease community came together to celebrate NORD’s 35th Anniversary and to recognize the amazing accomplishments of the 2018 honorees during NORD’s 35th Anniversary Celebration presenting… Read More

Penn State Graduate Rare Disorder Survey

Written by Lisa Sencen on September 12, 2016
rare-disorder-survey

Written by: Kerri Nelson, graduate student at Penn State University and mother to a child with a rare disease.


masonAs both a mother to a child with a rare disorder and a healthcare professional, I was at loss for words when my… Read More