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Archives for: April 30th, 2020

Welcome to NORDpod (Teaser)

Written by Valaree DonFrancesco on April 30, 2020

Welcome to NORDpod™, the voice of rare disease and the official podcast of The National Organization of Rare Disorders (NORD®), a 501(c)(3) patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. We are one community, and, together, our voices are louder. Read More

A Celebration of NORD’s 35th Anniversary

Written by Lisa Sencen on May 31, 2018

On Thursday, May 17 at the Andrew W. Mellon Auditorium in Washington, D.C. the rare disease community came together to celebrate NORD’s 35th Anniversary and to recognize the amazing accomplishments of the 2018 honorees during NORD’s 35th Anniversary Celebration presenting… Read More

Penn State Graduate Rare Disorder Survey

Written by Lisa Sencen on September 12, 2016

Written by: Kerri Nelson, graduate student at Penn State University and mother to a child with a rare disease.

masonAs both a mother to a child with a rare disorder and a healthcare professional, I was at loss for words when my… Read More

Key Dates Approaching for NORD Summit

Written by Lisa Sencen on August 18, 2016

Advanced Pricing Deadline is Friday, August 26

Register for NORD’s annual Rare Diseases & Orphan Products Breakthrough Summit (Oct. 17-18, Arlington, VA) by August 26 and save up to $400. More specific pricing information for the summit can be found here.

Poster Abstracts are due Friday, August 19

Calling all researchers… Read More