Written by Valaree DonFrancesco on April 30, 2020
Welcome to NORDpod™, the voice of rare disease and the official podcast of The National Organization of Rare Disorders (NORD®), a 501(c)(3) patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. We are one community, and, together, our voices are louder. Read More
Written by Valaree DonFrancesco on April 15, 2020
Washington, DC, April 15, 2020— At this time of crisis and with the health, safety and well-being of patients and caregivers as its top priorities, the National Organization for Rare Disorders (NORD®) today launched its COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare… Read More
Written by Lisa Sencen on May 31, 2018
On Thursday, May 17 at the Andrew W. Mellon Auditorium in Washington, D.C. the rare disease community came together to celebrate NORD’s 35th Anniversary and to recognize the amazing accomplishments of the 2018 honorees during NORD’s 35th Anniversary Celebration presenting… Read More
Written by Lisa Sencen on September 12, 2016
Written by: Kerri Nelson, graduate student at Penn State University and mother to a child with a rare disease.
As both a mother to a child with a rare disorder and a healthcare professional, I was at loss for words when my… Read More
Written by Lisa Sencen on August 18, 2016
Advanced Pricing Deadline is Friday, August 26
Register for NORD’s annual Rare Diseases & Orphan Products Breakthrough Summit (Oct. 17-18, Arlington, VA) by August 26 and save up to $400. More specific pricing information for the summit can be found here.
Poster Abstracts are due Friday, August 19
Calling all researchers… Read More