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Archives for: February 16th, 2015

Join NORD to Celebrate Rare Disease Day

Written by Lisa Sencen on February 16, 2015
In celebration of Rare Disease Day, NORD is excited to host a special event for the rare disease community that includes a screening of the new documentary, “Banner on the Moon,” about Cindy Abbott and narrated by Valerie Harper.

Join us in D.C. for a reception and to see this inspiring… Read More

High-School Students Raise Awareness

Written by admin on May 29, 2013

Today, members of the NORD staff had the opportunity to meet a group of high-school advocates who are already making a difference to help raise awareness for rare diseases. (more…)

The Story Behind the Rare Disease Day School Curriculum

Written by on November 12, 2012

Two weeks ago, as my flight landed in Boston, I stepped outside of the plane with a long tube in my arm, inside of which was a very special poster. It was the poster about a project I had completed with NORD. I was about to present this poster at… Read More