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Archives for: February 29th, 2020

Race for Ryland 5K

Written by Sean Roberts on February 29, 2020

Race for Ryland 5K

Lace up your shoes and come run (walk) with us in to help raise awareness for rare diseases/disorders and honor our Rare Warrior Ryland Grace, born with Pyruvate Dehydrogenase Complex, on the rarest day of the year.

February 29,… Read More

Rare Disease Day 2020

Written by Valaree DonFrancesco on February 29, 2020

Each year on the last day of February, the rare disease community comes together to raise awareness for the 25-30 million Americans impacted by rare diseases.

Rare Disease Day® takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst… Read More

Georgia Rare Disease Day 2020

Written by Sean Roberts on February 28, 2020

Friday, February 28, 2020

at the Georgia State Capitol, 206 Washington Street SW, Atlanta, GA.

Join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event to discuss the challenges… Read More