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Archives for: January 23rd, 2019

10 Ways to Show Your Stripes this Rare Disease Day!

Written by Lisa Sencen on January 23, 2019
rare disease day show your stripes campaign

The zebra, with its distinctive stripes, is the official symbol of rare diseases in the United States. While each of the more than 7,000 rare diseases is unique, there are many commonalities that unite our community. To raise awareness around rare disease issues, NORD is promoting specific ways that individuals,… Read More

Featured Student: Scarlett Eagle

Written by Lisa Sencen on January 18, 2019

NORD’s Educational Initiatives team spoke with Scarlett Eagle, an undergraduate student at Iowa State University and NORD Students for Rare Club Leader. In this interview, Scarlett talks about her inspiration for starting a NORD Students for Rare Club and where she hopes to see her career go working… Read More

NORD Issues New Rare Disease DayⓇ Rallying Cry: Show Your Stripes™!

Written by Lisa Sencen on January 16, 2019

Washington, DC, January 16, 2019–The National Organization for Rare Disorders (NORD)Ⓡ, the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseases, has announced a new campaign for Rare Disease Day centering on three simple words: Show Your Stripes, with a call to action for… Read More

Rare Disease Day 2019 is Only 10 Weeks Away!

Written by Lisa Sencen on December 20, 2018

Every year, individuals around the globe come together for one special day to recognize and raise awareness for rare diseases. This day, Rare Disease Day® (RDD), takes place on the last day of February each year. The next RDD will fall on February 28, 2019.

Together, we can raise the profile… Read More