Written by Jennifer Huron on June 25, 2018
2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary. For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate. Our policy, research and other efforts have played a significant… Read More
Written by Laura Mullen on June 20, 2018
*The following article ran 6/19/2018 via Pennsylvania Legislative Services, an online legislative research, tracking, media, and analysis service providing access to Pennsylvania’s policy making process.
SUPPORTERS, LAWMAKERS CELEBRATE RARE DISEASE AWARENESS DAY
By Derek Snyder, Pennsylvania Legislative Services | June 19, 2018
Dozens of advocates joined… Read More
Written by Lisa Sencen on April 25, 2018
Patrick Dunegan and his wife, Jennifer, met at church, spending time together serving their local community as Kentucky Colonels and through volunteer work with the Jewish Hospital… Read More
Written by Lisa Sencen on March 7, 2018
Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day® in 2018. On this day, everyone comes together globally to bring attention to all 7,000 rare diseases that combined affect 30… Read More
Written by Lisa Sencen on February 28, 2018
In celebration of Rare Disease Day 2018, NORD will moderate a tweetchat on the important topic “What To Do If You or Your Child Receive a Rare Disease Diagnosis” with co-hosts Boston Children’s Hospital and The Mighty.
Join us! The tweetchat is an opportunity for patients, experts, doctors, the rare disease community… Read More