Written by Lisa Sencen on July 7, 2017
Washington, D.C., July 7, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Bosma arhinia microphthalmia (BAM) syndrome. This new resource is available free online to individuals around the world.
As the primary advocacy… Read More
Written by Lisa Sencen on September 12, 2016
This summer marked our one-year anniversary of hosting the Rare Disease of the Day campaign on our Facebook page and website. It has been a productive campaign, sharing information on over 200 rare diseases, in line… Read More
Written by Lisa Sencen on August 6, 2015
Today, Rare Disease Report®, the flagship property of Rare Disease Communications® (RDC), a growing healthcare communications and media company, and the National Organization for Rare Disorders (NORD)®, the leading, independent nonprofit organization committed to the identification, treatment and cure of rare diseases, announced a new editorial collaboration.
The collaboration will fRead More