Written by Lisa Sencen on June 13, 2019
The following story was submitted by Jenny Malec in honor of June’s Rare Spotlight, Appendix Cancer and Pseudomyxoma Peritonei (ACPMP). In this story, Jenny reflects on her life-changing experience after undergoing a clinical trial for ACPMP. A special thanks to NORD’s… Read More
Written by Lisa Sencen on April 30, 2019
All U.S. and international researchers are encouraged to apply by the initial application deadline of June 18, 2019
Washington, DC, April 30, 2019 – The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseasesRead More
