Rare Disease Research Grant Archives - NORD (National Organization for Rare Disorders)

Jenny’s ACPMP Story

Written by Lisa Sencen on June 13, 2019

The following story was submitted by Jenny Malec in honor of June’s Rare Spotlight, Appendix Cancer and Pseudomyxoma Peritonei (ACPMP). In this story, Jenny reflects on her life-changing experience after undergoing a clinical trial for ACPMP. A special thanks to NORD’s… Read More

NORD Research Grant Program Celebrates 30th Anniversary, Funding Opportunities Announced

Written by Lisa Sencen on April 30, 2019

All U.S. and international researchers are encouraged to apply by the initial application deadline of June 18, 2019

Washington, DC, April 30, 2019 – The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseasesRead More

Archives for: June 13th, 2019

Jenny’s ACPMP Story

Written by Lisa Sencen on June 13, 2019

Alone we are rare. Together we are strong.®