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Archives for: June 13th, 2019

NORD Research Grant Program Celebrates 30th Anniversary, Funding Opportunities Announced

Written by Lisa Sencen on April 30, 2019

All U.S. and international researchers are encouraged to apply by the initial application deadline of June 18, 2019

Washington, DC, April 30, 2019 – The National Organization for Rare Disorders® (NORD), the leading independent nonprofit organization representing the 25-30 million Americans living with rare diseasesRead More

Hear from NORD’s registry community

Written by Lisa Sencen on March 20, 2019

During the 2018 Rare Diseases & Orphan Products Breakthrough Summit, NORD spoke with its IAMRARE registry users to get their thoughts on how their patient registries are benefiting their communities and how they are able to use the data. See the videos below and on our Youtube channel… Read More