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Archives for: June 1st, 2017

Tweetchat on Pediatric Cancers, #KidsCancerChat

Written by Christina Jensen on September 21, 2016

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September is Pediatric Cancer Awareness Month. Did you know that all pediatric cancers are rare?

Tweetchat Coordinates
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May 26, 2016
1:00 – 2:00 p.m. EDT

#RareERChatNORD

A trip to the emergency room with a rare disorder can present challenges. For one,… Read More

NORD Summit 2016

Written by Christina Jensen on May 23, 2016

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Save the date for the 2016 NORD Summit! Attendees can look forward to:

  • Timely Topics
    • Sessions on genetic innovation, collaborations across borders, reimbursement, pricing and access, off-label concerns, driving progress through policy and more.
  • Inspiring Perspectives
    • Hear from manufacturers, patients, advocates, legislative and regulatory leaders, academics,… Read More