Written by Lisa Sencen on November 14, 2017
Washington, D.C., November 14, 2017 – “Today, the Senate Finance Committee continues its consideration of the Tax Cuts and Jobs Act. Our organizations, which collectively represent millions of individuals with rare diseases, stand united in opposition to the Senate Finance Committee’s proposal to substantially weaken the Orphan Drug… Read More
Written by Lisa Sencen on October 31, 2017
NORD Board Chair Marshall Summar MD will moderate a National Disability Forum on Compassionate Allowances and Rare Diseases to be hosted by the Social Security Administration (SSA) on Tuesday, Nov. 7.
The event will provide a platform for rare disease patient advocates and medical experts to suggest diseases for consideration… Read More