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Archives for: November 14th, 2017

Statement by 36 Patient Organizations in Opposition to Senate’s Proposed Weakening of the Orphan Drug Tax Credit

Written by Christina Jensen on November 14, 2017

Washington, D.C., November 14, 2017 – “Today, the Senate Finance Committee continues its consideration of the Tax Cuts and Jobs Act. Our organizations, which collectively represent millions of individuals with rare diseases, stand united in opposition to the Senate Finance Committee’s proposal to substantially weaken the Orphan Drug… Read More

Tweetchat on Genetic Testing, #genetest101

Written by Christina Jensen on July 13, 2017

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When: Thursday, July 13, 2:00 p.m. – 3:00 p.m. ET
Tweetchat Hashtag:… Read More

Tweetchat on Pediatric Cancers, #KidsCancerChat

Written by Christina Jensen on September 21, 2016


September is Pediatric Cancer Awareness Month. Did you know that all pediatric cancers are rare?

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