Wednesday, November 15
7:00 p.m. EST
With the December 15th deadline to select an Affordable… Read More

Statement by 36 Patient Organizations in Opposition to Senate’s Proposed Weakening of the Orphan Drug Tax Credit

Written by Lisa Sencen on November 14, 2017

Washington, D.C., November 14, 2017 – “Today, the Senate Finance Committee continues its consideration of the Tax Cuts and Jobs Act. Our organizations, which collectively represent millions of individuals with rare diseases, stand united in opposition to the Senate Finance Committee’s proposal to substantially weaken the Orphan Drug… Read More

Tweetchat on Genetic Testing, #genetest101

Written by Lisa Sencen on July 13, 2017

NRD-1082 ChildNatl_Tweetchat_v6

Tweetchat Coordinates
When: Thursday, July 13, 2:00 p.m. – 3:00 p.m. ET
Tweetchat Hashtag:… Read More