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Archives for: October 27th, 2015

Taking on NYC and a Rare Disease: An Introduction

Written by Sophia Hanson on October 27, 2015

NORD-Student.Life.Blog

Sophia Hanson is a college student and has the rare disease, Lymphedema.  She is writing for NORD about the balancing act of going to college, moving away from home, and managing a rare disease.

 

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Narcolepsy Network

Written by Christina Jensen on October 5, 2015

The Narcolepsy Network is a national voluntary organization that was formed to serve the needs of people with narcolepsy. Narcolepsy Network is gearing up for their annual conference which will be taking place this coming weekend, October 9-11 in Minneapolis, Minnesota. Click here to learn more about the… Read More

Taking Action for ACD

Written by on October 7, 2014

On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. “Around midnight on… Read More