Rare Diseases and Orphan Products Breakthrough Summit Archives - NORD (National Organization for Rare Disorders)

Three Big Reasons Not to Miss the 2018 NORD Rare Summit

Written by Christina Jensen on September 12, 2018

Written by Christina Jensen on August 9, 2018

Dear Reader,

I want to invite you to join me and 700 others from the rare disease community at our annual Summit. This year, NORD’s 2018 Rare Diseases and Orphan Products Breakthrough Summit will take place October 15-16 in Washington, D.C.

We expect this year’s Summit to again be the… Read More

FDA Commissioner Dr. Scott Gottlieb Confirmed as 2018 NORD Rare Summit Keynote Speaker

Written by Christina Jensen on July 11, 2018

1200px-Scott_Gottlieb_official_portrait Dr. Scott Gottlieb was sworn in as the 23rd Commissioner of Food and Drug Administration in 2017, and provided a keynote speech at the NORD Rare Summit shortly thereafter. 2018 marks his second year at the Summit, and we look forward to… Read More

Early Diagnosis: Perspectives from NORD Student Chapter Leader, Harjot Randhawa

Written by Christina Jensen on January 18, 2018

During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to have a large group of student chapter leaders involved with the event in 2017. One leader,… Read More

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Copyright ©2018 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.

Archives for: September 20th, 2018

Chat, Chew, and Be Challenged! Lunchtime Learning at the NORD Rare Summit

Written by Christina Jensen on September 20, 2018