Rare Diseases and Orphan Products Breakthrough Summit Archives - NORD (National Organization for Rare Disorders)

2019 NORD Rare Summit to Feature Caregivers Who Have Moved from Inspiration to Action

Written by Lisa Sencen on July 31, 2019

Washington, DC, July 31, 2019—The National Organization for Rare Disorders (NORD)®, the leading independent nonprofit organization representing the over 25 million Americans with rare diseases, has announced the Patient/Caregiver Opening Address speakers for the 2019 NORD Rare Diseases & Orphan Products Breakthrough Summit, to be held October 21-22 in… Read More

Chat, Chew, and Be Challenged! Lunchtime Learning at the NORD Rare Summit

Written by Lisa Sencen on September 20, 2018

Make your choice from this menu of thought-provoking, informative Lunch & Learn sessions available for attendees of the 2018 NORD Rare Summit. With only 25 days to go, be sure to save your seat at the table by registering for the Summit and choosing your lunch option now! Lunch &… Read More

Three Big Reasons Not to Miss the 2018 NORD Rare Summit

Written by Lisa Sencen on September 12, 2018

Written by Lisa Sencen on August 9, 2018

Dear Reader,

I want to invite you to join me and 700 others from the rare disease community at our annual Summit. This year, NORD’s 2018 Rare Diseases and Orphan Products Breakthrough Summit will take place October 15-16 in Washington, D.C.

We expect this year’s Summit to again be the… Read More

FDA Commissioner Dr. Scott Gottlieb Confirmed as 2018 NORD Rare Summit Keynote Speaker

Written by Lisa Sencen on July 11, 2018

1200px-Scott_Gottlieb_official_portrait Dr. Scott Gottlieb was sworn in as the 23rd Commissioner of Food and Drug Administration in 2017, and provided a keynote speech at the NORD Rare Summit shortly thereafter. 2018 marks his second year at the Summit, and we look forward to… Read More

Archives for: July 31st, 2019