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Archives for: August 15th, 2017

Advance the Dialogue at the NORD Rare Summit

Written by Christina Jensen on August 15, 2017

It has been an interesting year for healthcare reform and the Orphan Drug Act, and as I’m sure you are aware; the conversation isn’t over yet. Major changes to healthcare and tax reform continue to be discussed and that is why it is so important that now, more than ever, rare… Read More

St. Jude Rock ‘N’ Roll Nashville Marathon

Written by Christina Jensen on April 29, 2017

Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Nashville Marathon. Click here to apply.


About the Team

When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for… Read More