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Archives for: July 2nd, 2019

Registration Open for 2019 NORD Rare Summit

Written by Lisa Sencen on July 2, 2019

The time is now

  • To address affordability for patients,
  • To drive progress with a unified voice,
  • To understand the role of advancing technology in rare disease, and
  • To register for the 2019 NORD Rare Summit!

In 2019, we believe The Time is Now to prioritize action in order to develop stronger resources, build better outcomes… Read More

2018 Rare Diseases & Orphan Products Breakthrough Summit

Written by Lisa Sencen on October 15, 2018

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The team at NORD is looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases & Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in… Read More

Save the Date for NORD’s 2018 Rare Summit

Written by Lisa Sencen on May 21, 2018

We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in your calendars and keep an eye out for a registration announcement in early June.

Read More

35 Ways to Celebrate the 35th Anniversary of NORD

Written by Jennifer Huron on March 5, 2018

2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary.  For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate.  Our policy, research and other efforts have played a significant role over the years, advocating for… Read More