Written by Lisa Sencen on July 2, 2019
The time is now…
- To address affordability for patients,
- To drive progress with a unified voice,
- To understand the role of advancing technology in rare disease, and
- To register for the 2019 NORD Rare Summit!
In 2019, we believe “The Time is Now“ to prioritize action in order to develop stronger resources, build better outcomes… Read More
Written by Lisa Sencen on October 15, 2018
The team at NORD is looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases & Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in… Read More
2018 NORD Rare Summit to Feature Distinguished Speakers Discussing a New Era of Patient-Focused Innovation
Written by Lisa Sencen on August 29, 2018
Washington, D.C., August 29, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, has announced some of the speakers confirmed for the 2018 NORD Rare Diseases & Orphan Products Breakthrough SummitRead More
Written by Lisa Sencen on May 21, 2018
We are looking forward to bringing all stakeholders in rare diseases together once again for our annual Rare Diseases and Orphan Products Breakthrough Summit. We hope to see you there! Please mark the details below in your calendars and keep an eye out for a registration announcement in early June.
Written by Jennifer Huron on March 5, 2018
2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary. For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate. Our policy, research and other efforts have played a significant role over the years, advocating for… Read More