Written by Valaree DonFrancesco on September 10, 2020

Washington, DC, September 10, 2020–At a time when it is vitally important for the rare disease community to come together, the National Organization for Rare Disorders (NORD®) has announced a program of broad-ranging topics with speakers of unparalleled expertise for the 2020 NORD Rare Diseases… Read More
Written by Valaree DonFrancesco on June 11, 2020

We are at a pivotal time in rare disease, one that requires new approaches and fresh perspectives in order to achieve real progress. Given the impact of the COVID-19 pandemic on clinical trials, drug development, and pharmaceutical innovation, connecting stakeholders and advancing meaningful dialogue is now more critical than ever… Read More
Written by Valaree DonFrancesco on October 23, 2019

Health and Human Services Secretary Alex Azar speaking at the NORD Summit on October 22, 2019
Washington, DC, October 23, 2019–Earlier this week, the National Organization for Rare DisordersⓇ (NORD) broke previous records with its 2019 Rare Diseases & Orphan Products Breakthrough SummitRead More
Written by Valaree DonFrancesco on September 27, 2019
On September 26, BioNews Service published an extensive article written by reporter Larry Luxner, previewing the upcoming NORD Rare Diseases & Orphan Products Breakthrough Summit, which will be taking place October 21-22 in Washington, DC.
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