Scroll
To Top

Archives for: June 20th, 2017

Protecting Your Healthcare Coverage

Written by Christina Jensen on June 20, 2017
Healthcare Coverage

The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.

Before the Affordable Care Act was enacted in 2010, rare disease patients faced discriminatory insurance practices due to their pre-existing condition. Patients… Read More

NORD/ABC Rare Disease Day Tweetchat

Written by Christina Jensen on March 1, 2016

NORD will co-sponsor a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News Medical/Health Unit. NORD will be live tweeting with Dr. Besser from@rarediseases and @RareDayUS (a Twitter feed dedicated to Rare Disease Day). Marsha Lanes, MS, CGC, NORD’s Genetic Counselor & Medical Educator, will be providing… Read More

Join NORD and ABC News for a Rare Disease Day Tweetchat on March 1

Written by Christina Jensen on January 21, 2016

Join us for a nationwide conversation about rare diseases on:

Tuesday, March 1, 2016
1:00 – 2:00 p.m. EST

In celebration of Rare Disease Day®, NORD will co-sponsor a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News… Read More

Join the Running for Rare Team!

Written by Christina Jensen on January 18, 2016
R4R-StickyPost-Applications

For the ninth consecutive year, runners will join together to help raise awareness for rare diseases while fundraising to support the NORD Undiagnosed Diseases Network (UDN) Patient Assistance Program.

The 2016 team is looking for runners to join the Boston, Providence Marathon and half Marathon teams, as well as RARE Community… Read More