Protecting Your Healthcare Coverage
Written by Christina Jensen on June 20, 2017
The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.
NORD/ABC Rare Disease Day Tweetchat
Written by Christina Jensen on March 1, 2016
NORD will co-sponsor a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News Medical/Health Unit. NORD will be live tweeting with Dr. Besser from@rarediseases and @RareDayUS (
Join NORD and ABC News for a Rare Disease Day Tweetchat on March 1
Written by Christina Jensen on January 21, 2016
Join us for a nationwide conversation about rare diseases on:
Tuesday, March 1, 2016
1:00 – 2:00 p.m. EST
In celebration of Rare Disease Day®, NORD will co-sponsor a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News… Read More
Join the Running for Rare Team!
Written by Christina Jensen on January 18, 2016
For the ninth consecutive year, runners will join together to help raise awareness for rare diseases while fundraising to support the NORD Undiagnosed Diseases Network (UDN) Patient Assistance Program.
The 2016 team is looking for runners to join the Boston, Providence Marathon and half Marathon teams, as well as RARE Community… Read More
What the Omnibus Bill Means for Rare Diseases
Written by Jennifer Huron on December 17, 2015
UPDATE (12/18/2015 12:20 p.m.): The House and Senate voted Friday to pass the omnibus spending bill that funds the government through September 2016. The House moved first, passing the government funding bill on a 316-113 vote. The Senate followed with a 65-33… Read More