Protecting Your Healthcare Coverage
Written by Christina Jensen on September 18, 2017
The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.
Advance the Dialogue at the NORD Rare Summit
Written by Christina Jensen on August 15, 2017
It has been an interesting year for healthcare reform and the Orphan Drug Act, and as I’m sure you are aware; the conversation isn’t over yet. Major changes to healthcare and tax reform continue to be discussed and that is why it is so important that now, more than ever, rare… Read More
NORD/ABC Rare Disease Day Tweetchat
Written by Christina Jensen on March 1, 2016
NORD will co-sponsor a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News Medical/Health Unit. NORD will be live tweeting with Dr. Besser from@rarediseases and @RareDayUS (
Join NORD and ABC News for a Rare Disease Day Tweetchat on March 1
Written by Christina Jensen on January 21, 2016
Join us for a nationwide conversation about rare diseases on:
Tuesday, March 1, 2016
1:00 – 2:00 p.m. EST
In celebration of Rare Disease Day®, NORD will co-sponsor a tweetchat on the topic of rare diseases with Dr. Richard Besser, Chief of the ABC News… Read More
Join the Running for Rare Team!
Written by Christina Jensen on January 18, 2016
For the ninth consecutive year, runners will join together to help raise awareness for rare diseases while fundraising to support the NORD Undiagnosed Diseases Network (UDN) Patient Assistance Program.
The 2016 team is looking for runners to join the Boston, Providence Marathon and half Marathon teams, as well as RARE Community… Read More