Written by Maia Craig on December 14, 2021
Rare Disease Day is a day of awareness for the over 7,000 rare diseases that impact over 300 million people globally!
As the US sponsor for Rare Disease Day, NORD is leading the call to light up the country in rare disease colors and unite both the rare disease community and the country as a whole. The more buildings, landmarks and… Read More
Written by Lisa Sencen on August 18, 2014
The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life – he most likely would not survive that day. His weakened muscles could not function normally which affected his… Read More
Written by on July 9, 2014
Katie Thortenson of Chicago is a proud mother of two healthy sons: her eldest, Jake, is 6, and her youngest, Drew, is 2, but often mistaken to be younger…. Read More