Scroll
To Top

Archives for: December 14th, 2021

How to Light Up for Rare – Rare Disease Day 2022

Written by Maia Craig on December 14, 2021

Rare Disease Day is a day of awareness for the over 7,000 rare diseases that impact over 300 million people globally! 

As the US sponsor for Rare Disease Day, NORD is leading the call to light up the country in rare disease colors and unite both the rare disease community and the country as a whole. The more buildings, landmarks and… Read More

The Will to Live and the Strength for a Cure

Written by Lisa Sencen on August 18, 2014

The day Joshua Frase was born, his parents Alison and Paul, were given grave news about their newborn’s life – he most likely would not survive that day. His weakened muscles could not function normally which affected his… Read More

Knowing More About Noonan

Written by on July 9, 2014

Katie Thortenson of Chicago is a proud mother of two healthy sons: her eldest, Jake, is 6, and her youngest, Drew, is 2, but often mistaken to be younger…. Read More