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Archives for: March 15th, 2017

Cynthia Tifft, M.D., Ph.D – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

Rare Impact Award

Cynthia Tifft

Cynthia Tifft, M.D., Ph.D.

Dr. Cynthia Tifft is working to solve some of the nation’s toughest medical mysteries.  As the Director of the Pediatric Undiagnosed Diseases Program at the National Institutes of Health,  she and her team strive… Read More

Beth Nguyen, R.N. – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Awards

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Beth Nguyen, R.N.

Mother, wife, nurse, patient, advocate, and leader; Beth Nguyen wears multiple hats, and not one loosely.

In 2007, before she began to experience health problems, Beth had a job she loved as… Read More

Matthew Might, Ph.D. – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Awards

Matt Might

Matthew Might, Ph.D.

Ten years ago, Dr. Matthew Might was working in computer science and knew very little about the world of rare diseases. Today, he runs his own rare disease research institute at the University… Read More

Ellie McGinn – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Award

 

Ellie McGinn

Ellie McGinn

At only 9 years old, Ellie McGinn is driving research for a rare and fatal disease, has educated nearly 1,000 future doctors, successfully advocated for the 21st Century Cures Act,… Read More

Dr. Frederick Kaplan, M.D. – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Award

Dr. Frederick Kaplan

Frederick Kaplan, M.D.

Dr. Frederick Kaplan’s life changed the day he met a 2-year-old girl with fibrodysplasia ossificans progressiva (FOP), a debilitating and progressive rare bone disorder.  In the three decades since, he has dedicated… Read More