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Archives for: May 31st, 2018

A Celebration of NORD’s 35th Anniversary

Written by Christina Jensen on May 31, 2018

On Thursday, May 17 at the Andrew W. Mellon Auditorium in Washington, D.C. the rare disease community came together to celebrate NORD’s 35th Anniversary and to recognize the amazing accomplishments of the 2018 honorees during NORD’s 35th Anniversary Celebration presenting… Read More

Cynthia Tifft, M.D., Ph.D – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

Rare Impact Award

Cynthia Tifft

Cynthia Tifft, M.D., Ph.D.

Dr. Cynthia Tifft is working to solve some of the nation’s toughest medical mysteries.  As the Director of the Pediatric Undiagnosed Diseases Program at the National Institutes of Health,  she and her team strive… Read More

Beth Nguyen, R.N. – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Awards

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Beth Nguyen, R.N.

Mother, wife, nurse, patient, advocate, and leader; Beth Nguyen wears multiple hats, and not one loosely.

In 2007, before she began to experience health problems, Beth had a job she loved as… Read More

Matthew Might, Ph.D. – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Awards

Matt Might

Matthew Might, Ph.D.

Ten years ago, Dr. Matthew Might was working in computer science and knew very little about the world of rare diseases. Today, he runs his own rare disease research institute at the University… Read More

Ellie McGinn – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Award

 

Ellie McGinn

Ellie McGinn

At only 9 years old, Ellie McGinn is driving research for a rare and fatal disease, has educated nearly 1,000 future doctors, successfully advocated for the 21st Century Cures Act,… Read More