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Archives for: March 15th, 2017

Ellie McGinn – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Award

 

Ellie McGinn

Ellie McGinn

At only 9 years old, Ellie McGinn is driving research for a rare and fatal disease, has educated nearly 1,000 future doctors, successfully advocated for the 21st Century Cures Act,… Read More

Dr. Frederick Kaplan, M.D. – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Award

Dr. Frederick Kaplan

Frederick Kaplan, M.D.

Dr. Frederick Kaplan’s life changed the day he met a 2-year-old girl with fibrodysplasia ossificans progressiva (FOP), a debilitating and progressive rare bone disorder.  In the three decades since, he has dedicated… Read More

Brandon Hudgins – 2017 Rare Impact Award Honoree

Written by on March 15, 2017

2017 Honoree
Rare Impact Award

Brandon Hudgins

Brandon Hudgins

For 20 years, Brandon Hudgins has chased his dreams of being an elite athlete and has put the demanding sport of competitive running at the center of his life.  Yet in September 2007, as… Read More