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Archives for: May 20th, 2019

Dr. Debra Regier: 2019 Rare Impact Award Honoree

Written by Lisa Sencen on May 20, 2019

Debra Regier, M.D., Ph.D. is the Director of Genetic and Genomic Education at Washington, DC’s Children’s National Medical Center, attending physician in genetics and metabolism and Primary Investigator (PI) for the Rare Disease Clinical Research Scholars Program. A graduate of the University of Utah School of… Read More

Last Rare Disease Day Event of 2018 a Success in Pennsylania

Written by Valaree DonFrancesco on June 20, 2018

*The following article ran 6/19/2018 via Pennsylvania Legislative Services, an online legislative research, tracking, media, and analysis service providing access to Pennsylvania’s policy making process.


By Derek Snyder, Pennsylvania Legislative Services | June 19, 2018

Dozens of advocates joined… Read More

A Celebration of NORD’s 35th Anniversary

Written by Lisa Sencen on May 31, 2018

On Thursday, May 17 at the Andrew W. Mellon Auditorium in Washington, D.C. the rare disease community came together to celebrate NORD’s 35th Anniversary and to recognize the amazing accomplishments of the 2018 honorees during NORD’s 35th Anniversary Celebration presenting… Read More