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Archives for: June 21st, 2019

Living Rare, Living Stronger NORD Patient & Family Forum

Written by Christina Jensen on June 21, 2019

 

Join NORD this June for a very special gathering of people living with rare diseases, and the medical professionals working to help improve their lives. Patients and families will gain insights and practical tools through educational sessions and discussions created just for… Read More

The Honorable Michael McCaul: 2019 Rare Impact Award Honoree

Written by Christina Jensen on May 20, 2019

Serving his eighth term in Texas’ 10th Congressional District, Congressman Michael McCaul has achieved significant advancements for the rare disease community. In particular, Congressman McCaul has been a strong supporter of pediatric cancer patients and their families. Over the course of his… Read More

The Honorable Sarah Davis: 2019 Rare Impact Award Honoree

Written by Christina Jensen on May 20, 2019

Representative Sarah Davis is a dedicated champion of the rare disease community in her home state of Texas. She is currently serving her fifth term as the State Representative for Texas House District 134, located in Houston, Texas. In Representative Davis’ role as Chair of the Appropriations Subcommittee… Read More