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Archives for: June 21st, 2019

Living Rare, Living Stronger NORD Patient & Family Forum

Written by Christina Jensen on June 21, 2019

Join NORD this June for a very special gathering of people living with rare diseases, and the medical professionals working to help improve their lives. Patients and families will gain insights and practical tools through educational sessions and discussions created just for… Read More

NORD Issues Statement on the Passing of Dr. Robert M. Campbell

Written by Christina Jensen on August 6, 2018

Washington, D.C., August 6, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the recent passing of Dr. Robert M. Campbell.

“NORD is deeply saddened to learn of the passing of Dr. Robert… Read More

A Celebration of NORD’s 35th Anniversary

Written by Christina Jensen on May 31, 2018

On Thursday, May 17 at the Andrew W. Mellon Auditorium in Washington, D.C. the rare disease community came together to celebrate NORD’s 35th Anniversary and to recognize the amazing accomplishments of the 2018 honorees during NORD’s 35th Anniversary Celebration presenting… Read More

NORD’s 35th Anniversary & Rare Impact Awards Celebration

Written by Christina Jensen on May 17, 2018

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NORD’s 35th Anniversary Celebration presenting the 2018 Rare Impact Awards will be held on May 17, 2018, in Washington, D.C. at the Andrew W. Mellon Auditorium. This event will celebrate the efforts to help the 30 million Americans with rare diseases… Read More