Written by Christina Jensen on June 21, 2019
Join NORD this June for a very special gathering of people living with rare diseases, and the medical professionals working to help improve their lives. Patients and families will gain insights and practical tools through educational sessions and discussions created just for… Read More
Written by Christina Jensen on April 9, 2019
The 2019 Living Rare, Living Stronger NORD Patient and Family Forum promises to be an unforgettable weekend for patients, families, medical professionals and students. Download the agenda now and register by April 26 to take advantage of… Read More
Written by Christina Jensen on March 12, 2019
Washington, DC, March 12, 2019—The National Organization for Rare Disorders (NORD) today announced the individuals, organizations and industry innovators who will be honored for their outstanding work in support of the rare disease community at this year’s Rare Impact Awards on June 22.
Written by Laura Mullen on December 17, 2018
This June in Houston, Texas, the 2019 Living Rare, Living Stronger | NORD Patient & Family Forum will bring the rare community together with physicians, medical students and allied health
professionals for a program of learning, sharing and connection… Read More
Written by Christina Jensen on August 6, 2018
Washington, D.C., August 6, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the recent passing of Dr. Robert M. Campbell.
“NORD is deeply saddened to learn of the passing of Dr. Robert… Read More