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Archives for: October 14th, 2016

Nominations Open for NORD’s 2017 Rare Impact Awards

Written by Jennifer Huron on October 14, 2016

Washington, D.C., October 14, 2016—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced it is accepting nominations for the 2017 Rare Impact Awards.

Submissions are now open online at www.rareimpact.org/awards.  Submissions will close on Friday, January 13,… Read More

Watch Live: Tomorrow’s Rare Impact Awards Ceremony

Written by Lisa Sencen on May 16, 2016
Rare Impact Awards Live Stream: Watch the Ceremony Online
It is almost time for the Rare Impact Awards!  Not able to attend in person? NORD has you covered: join us for the live… Read More

NORD to Hold Rare Diseases Roundtable

Written by Jennifer Huron on May 12, 2016

NORD_RareImpactAwards2016_Program_Page6The National Organization for Rare Disorders (NORD) will host a roundtable on May 17 with a wide range of stakeholders who are creating positive change across the rare disease community.

The roundtable will be held at the Warner Theatre in… Read More

Dr. Arthur Caplan: 2016 Rare Impact Award Honoree

Written by Lisa Sencen on May 11, 2016

When he was six years old, Arthur Caplan came down with polio and was temporarily paralyzed. That episode – which included time at Boston’s Mass General Hospital followed by rehab – “always left me with a patient perspective,” Dr. Caplan says.

That perspective and his tendency… Read More

Dawn Laney: 2016 Rare Impact Award Honoree

Written by Lisa Sencen on May 11, 2016

A leading expert in her field, Dawn Laney, M.S., C.G.C., C.C.R.C. is a genetic counselor, instructor, and program leader at Emory University in the Department of Human Genetics.  She manages Emory’s infusion center and lysosome storage disease clinical research, and is a sought-after specialist in Fabry Disease, a… Read More