Written by Lisa Sencen on May 5, 2016
Noah Maria Victoria wrote her first poem at the age of 13 or 14 as a homework assignment. She composed “The Window,” a metaphor for her journey and countless trips to Children’s Hospital and the National Institutes of Health clinical centers. “My car window has been my companion… Read More
Written by Lisa Sencen on January 5, 2016
For more than 25 years, NORD has hosted an annual celebration to honor the year’s top achievements in rare diseases. In 2016, we are expanding the program and want to hear from you about the difference makers.
They are patients, caregivers, advocates, doctors,… Read More