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Archives for: May 16th, 2016

Watch Live: Tomorrow’s Rare Impact Awards Ceremony

Written by Lisa Sencen on May 16, 2016
Rare Impact Awards Live Stream: Watch the Ceremony Online
It is almost time for the Rare Impact Awards!  Not able to attend in person? NORD has you covered: join us for the live… Read More

Noah Victoria: 2016 Rare Impact Award Honoree

Written by Lisa Sencen on May 5, 2016

Noah Maria Victoria wrote her first poem at the age of 13 or 14 as a homework assignment.  She composed “The Window,” a metaphor for her journey and countless trips to Children’s Hospital and the National Institutes of Health clinical centers.  “My car window has been my companion… Read More

Register for the 2016 Rare Impact Awards

Written by Lisa Sencen on January 5, 2016

For more than 25 years, NORD has hosted an annual celebration to honor the year’s top achievements in rare diseases. In 2016, we are expanding the program and want to hear from you about the difference makers.

 

They are patients, caregivers, advocates, doctors,… Read More