2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary. For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate. Our policy, research and other efforts have played a significant… Read More
Senate Passes Landmark 21st Century Cures Act
Washington, D.C., December 7, 2016—Today, the United States Senate overwhelmingly approved the 21st Century Cures Act, a game-changer for medical innovation, by a bipartisan vote of 94-5. The President is expected to… Read More
On Tuesday, November 15th, take action to support the 21st Century Cures Act! This vital piece of legislation includes billions of dollars in new funding for critical research at the National Institutes of Health, new funding to accelerate drug approval at the Food and Drug Administration, and several provisions… Read More
Unanimous vote extends the Rare Pediatric Disease Priority Review Voucher Program with important policy changes through December
Washington, D.C., September 23, 2016 – On Thursday, the Senate reached an important compromise to accelerate new treatments to help 15 million sick children with rare diseases.
Led by Senators Robert Casey (D-PA), Johnny Isakson (R-GA),… Read More
UPDATE (12/18/2015 12:20 p.m.): The House and Senate voted Friday to pass the omnibus spending bill that funds the government through September 2016. The House moved first, passing the government funding bill on a 316-113 vote. The Senate followed with a 65-33… Read More
