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Archives for: September 16th, 2020

Rare Cancer Day 2020 To Take Place on September 30

Written by Laura Mullen on September 16, 2020

Washington, DC, September 16, 2020–The National Organization for Rare Disorders (NORD®) has announced the second annual Rare Cancer Day, taking place September 30, 2020. Spearheaded by the NORD Rare Cancer Coalition, which is composed of 27 rare cancer-specific member organizations, Rare… Read More

Voices of Rare Cancer: Lisa’s Story

Written by Valaree DonFrancesco on October 1, 2019

Life was busy in 2010 with work, volunteering and engaging with our sons’ sports schedules. Being tired was just part of our eventful lifestyle. Consequently, when we received my diagnosis of stage IV intrahepatic cholangiocarcinoma at the age of 46, we were shocked. We believed we were investigating… Read More

Voices of Rare Cancer: Brian’s Story

Written by Valaree DonFrancesco on October 1, 2019

WHAM! The news I received from my doctor was a left hook to my temple thrown by Muhammad Ali. I was just told that I had myelodysplastic syndromes (MDS). My name is Brian. It was December 2016 and my doctor at Moffitt Cancer Center in Tampa Florida, Dr. David Sallman,… Read More