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Archives for: August 30th, 2019

Voices of Rare Cancer: Kristin’s Story

Written by Laura Mullen on August 30, 2019

This story is my rare cancer syndrome journey. I have a rare genetic illness called PTEN hamartoma tumor syndrome, which was diagnosed in 2011 after I was diagnosed with thyroid cancer in 2009. I am also a three-time cancer survivor, surviving two melanoma surgeries. I have undergone two… Read More

Mark Your Calendars – October 1 is Rare Cancer Day!

Written by Laura Mullen on August 21, 2019

Washington, DC, August 29, 2019–The National Organization for Rare DisordersⓇ (NORD) has announced a day devoted to raising awareness about rare cancers. Spearheaded by the NORD Rare Cancer Coalition, which is comprised of 24 rare cancer-specific Member Organizations, Rare Cancer Day will be observed on October 1 to… Read More