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Archives for: May 27th, 2016

NORD Members Share Great Resources for ER Visits During #RareERChat

Written by Mary Dunkle on May 27, 2016

Emergency room visits are a fact of life for many people with rare diseases. And, when the patient is a child, these experiences can be especially stressful for the entire family.

For that reason, NORD was delighted to host a tweetchat with Texas Children’s Hospital –… Read More

NORD Hosts Tweetchat with Texas Children’s Hospital on Navigating the Pediatric ER (May 26)

Written by Christina Jensen on May 25, 2016

May 26, 2016
1:00 – 2:00 p.m. EDT

#RareERChatNORD

A trip to the emergency room with a rare disorder can present challenges. For one,… Read More