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Archives for: September 15th, 2022

Rare Disease Workshop Highlights the Importance of Data Sharing in Drug Development 

Written by Rohan Narayanan on September 15, 2022

C-Path, NORD and FDA hosted an annual workshop September 13-14 to spotlight the impact of their innovative data and analytics platform on rare disease drug development 

TUCSON, Ariz. and WASHINGTON, DC, September 15, 2022 — The Rare Disease Cures Accelerator-Data and Analytics Platform initiative (RDCA-DAP®) Read More

2022 RDCA-DAP Workshop

Written by Valaree DonFrancesco on September 13, 2022

Registration is OPEN for the 2022 RDCA-DAP Workshop! Join us this September as we bring rare disease stakeholders together for next-level platform demonstrations and case studies, industry expert presentations, panel discussions, and more.

Register here: bit.ly/2022_NORD_RDCA-DAP_Workshop

Attendees of the 1.5-day workshop, including patients, providers, researchers, clinicians, biopharmaceutical companies, regulatory reviewers, and… Read More

A Conversation on Drug Development for Rare Diseases

Written by Mary Dunkle on July 7, 2022

Explore the five steps in drug development and discover new opportunities to get involved

More than 95% of rare disease patients lack an FDA-approved treatment for their condition. However, today there are more opportunities than ever before for patients, caregivers and patient organizations to play a key role in advancing R&D… Read More