TUCSON, Ariz. and WASHINGTON, D.C. October 21, 2020 — The Critical Path Institute (C-Path) and the National Organization for Rare Disorders (NORD®) hosted the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP) 2020 Virtual Workshop on Monday, October 19. The platform, funded by a cooperative agreement through… Read More
NORD and the Critical Path Institute (C-Path) are collaborating on a new initiative, the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP), bringing together data… Read More
There are over 7,000 rare diseases, approximately 90% do not have FDA-approved treatments, and the… Read More
At the Head of the Herd is… Katie Wright, Director, The VEDS Movement (a division of The Marfan Foundation)
Katie advocates for those living with… Vascular Ehlers-Danlos Syndrome (VEDS)
How Katie got here… When I was diagnosed with VEDS at 28 years old in 2017, I felt very alone. I was also pretty… Read More
