Written by Valaree DonFrancesco on October 14, 2020
NORD and the Critical Path Institute (C-Path) are collaborating on a new initiative, the Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP), bringing together data… Read More
Written by Valaree DonFrancesco on September 23, 2020
There are over 7,000 rare diseases, approximately 90% do not have FDA-approved treatments, and the… Read More
Written by Valaree DonFrancesco on August 14, 2020

At the Head of the Herd is… Katie Wright, Director, The VEDS Movement (a division of The Marfan Foundation)
Katie advocates for those living with… Vascular Ehlers-Danlos Syndrome (VEDS)
How Katie got here… When I was diagnosed with VEDS at 28 years old in 2017, I felt very alone. I was also pretty… Read More