There are over 7,000 rare diseases, approximately 90% do not have FDA-approved treatments, and the… Read More
At the Head of the Herd is… Katie Wright, Director, The VEDS Movement (a division of The Marfan Foundation)
Katie advocates for those living with… Vascular Ehlers-Danlos Syndrome (VEDS)
How Katie got here… When I was diagnosed with VEDS at 28 years old in 2017, I felt very alone. I was also pretty… Read More
Launched by C-Path and NORD through an FDA grant, the goal of the new platform is to accelerate the development of cures by addressing the need to better characterize rare diseases.
TUCSON, Ariz. and WASHINGTON, September 19, 2019 — The Critical Path Institute… Read More
The collaborative project between the organizations will kick off at a launch meeting in September and will aim to reduce barriers for the development of new treatments and cures for rare diseases.
TUCSON, Ariz. and WASHINGTON,
