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Archives for: December 20th, 2018

Rare Disease Day 2019 is Only 10 Weeks Away!

Written by Lisa Sencen on December 20, 2018

Every year, individuals around the globe come together for one special day to recognize and raise awareness for rare diseases. This day, Rare Disease Day® (RDD), takes place on the last day of February each year. The next RDD will fall on February 28, 2019.

Together, we can raise the profile… Read More

Campaign to Educate State Legislators for Rare Disease Day

Written by admin on December 14, 2012

Each year NORD provides a list of suggested activities for Rare Disease Day. This year, one of those major projects is a nationwide campaign to help leaders of rare disease patient organizations — and those who support them — educate their state officials for Rare Disease Day 2013 (Feb. 28,… Read More