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Archives for: August 12th, 2022

NORD Statement on Passage of the Inflation Reduction Act

Written by Rohan Narayanan on August 12, 2022

Washington, DC, August 12, 2022 – Following the passage of the Inflation Reduction Act, Peter L. Saltonstall, President and CEO, the National Organization for Rare Disorders (NORD), issued the following statement:  

“The Inflation Reduction Act is a significant step forward in helping ensure that individuals… Read More

NORD Response to New Draft of the Build Back Better Act

Written by Rohan Narayanan on October 29, 2021

The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to newly introduced draft of the Build Back Better Act (H.R. 5376):

Peter Saltonstall, CEO and President of NORD, stated: “As negotiations continue on the Build Back Better Act, NORD urges… Read More