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Archives for: September 21st, 2022

NORD Opens Applications for Two New Rare Disease Research Grants

Written by Rohan Narayanan on September 21, 2022

Since 1989, NORD has awarded over 200 grants totaling over $9 million in approved funding 

September 21, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) announced new requests for proposal (RFP) for grant funding through NORD’s Jayne Holtzer Rare Disease Research Grants Program…. Read More

NORD Hosts the Largest Gathering of a Rare, Post-Transplant Cancer in History

Written by Rohan Narayanan on May 11, 2022

Post-Transplant Lymphoproliferative Disorder (PTLD) is a rare cancer related to organ and stem cell transplants, as well as Epstein bar disease. There is no nonprofit organization dedicated to this community and the last known gathering involved less than a dozen patients and caregivers, pre-pandemic. When NORD learned of interest… Read More

NORD Announces over $100,000 in Grant Funding Available for Rare Disease Research

Written by Rohan Narayanan on April 29, 2022

Three RFPs Now Open for Qualified Researchers through NORD’s Jayne Holtzer Rare Disease Research Grants Program 

April 29, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) announced three new requests for proposal (RFP) for grant funding related to the following rare diseases: Autoimmune… Read More