Written by Jennifer Huron on July 26, 2018
Editor’s Note: During the week of July 23-27, 2018, NORD featured pheochromocytoma as the Rare Disease of the Week in order to raise awareness for this rare type of cancer. The blog post below was written in November 2015, sharing the story of the Yankanich family who has been… Read More
Written by Valaree DonFrancesco on May 24, 2018
All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018
Washington, D.C., May 24, 2018 – The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, announces the… Read More
Written by Lisa Sencen on July 25, 2017
Washington, D.C., July 25, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Retinal Vasculopathy with Cerebral Leukodystrophy (RVCL). This new resource is available free online to individuals around the world.
As the primary… Read More
Written by Jennifer Huron on February 24, 2017
Washington, D.C.—February 24, 2017—The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has awarded seven new research grants to fund rare disease research.
Research grants awarded for 2016 Requests for Proposals include:
For the study of Alveolar Capillary… Read More
Written by Lisa Sencen on February 3, 2017
By raising your hand, you can show your support for the 30 million Americans with rare diseases.
Simply click here and Lundbeck will donate $1 to rare disease research (up to $10,000 for the campaign). The donations will be added to a general research fund managed by NORD. The campaign will run through the month of February in honor of Read More