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Archives for: September 4th, 2015

Research Grants for Rare Disease Research Available from National Organization for Rare Disorders (NORD)

Written by Jennifer Huron on July 15, 2015

The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cures of rare diseases, has announced the availability of new research grants to study rare diseases.  The deadline to submit abstracts and letters of intent is July 31.

NORD’s 2015 research grant funding is… Read More

Impact of the Orphan Drug Tax Credit on Treatments for Rare Diseases

Written by Jennifer Huron on June 17, 2015

 

Today, the National Organization for Rare Disorders (NORD), Biotechnology Industry Organization (BIO), and Ernst & Young released “Impact of the Orphan Drug Tax Credit on Treatments for Rare Diseases,” a new white paper examining the role of the Orphan Drug Tax Credit (ODTC) on rare disease drug discovery.   Patients share… Read More

Registries for Rare Diseases: Involve the Patient

Written by Jennifer Huron on January 15, 2015

In a new interview with Medscape, Marshall L. Summar, chief of genetics and metabolism at Children’s National Medical Center in Washington, D.C. and NORD marshallboard member, talks about the importance of patient registries for rare diseases, and the… Read More