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Archives for: May 22nd, 2018

NORD Issues Statement Regarding House Passage of the Right to Try Act (S.204)

Written by Christina Jensen on May 22, 2018
Washington, D.C., May 22, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement following today’s passage of the Right to Try Act (S.204) in the House of Representatives:
“Today, the House of Representatives passed the… Read More

NORD Issues Statement Regarding House Vote on Right to Try

Written by Christina Jensen on March 22, 2018

Washington, D.C., March 22, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, released the following statement regarding last night’s vote in the House of Representatives on the Right to Try Act:

“Last night, the House of Representatives… Read More

NORD Rare Action Network® 2018 State Report Card

Written by Christina Jensen on March 20, 2018
Washington, DC, March 20, 2018—A majority of states are not measuring up on legislative solutions that reduce the burden of rare diseases affecting 30 million Americans, according to a new report released today by the National Organization for Rare Disorders Rare Action Network® (NORD RAN). The 2018 “State Report Card”… Read More

NORD Issues Statement Regarding House Vote on Right to Try

Written by Christina Jensen on March 14, 2018

Washington, D.C., March 14, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, released the following statement in regards to last night’s vote in the House of Representatives on the latest version of the Right to Try Act:

“Yesterday… Read More

83 Patient and Provider Organizations Remain Opposed to Right to Try Legislation

Written by Christina Jensen on March 13, 2018
Yesterday evening, NORD joined 82 patient and provider organizations in sending a letter to the House of Representatives stating our opposition to the newest version of the Right to Try Act that was released on Saturday and is scheduled for a vote today.
While this version contains considerable improvements to patient… Read More