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Archives for: February 6th, 2018

NORD Sends Letter to House of Representatives on Right to Try Act

Written by Valaree DonFrancesco on February 6, 2018

Washington, D.C., February 6, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today joined 37 patient and provider organizations in sending a letter to the House of Representatives in opposition to the Right to Try Act.

NORD supports all patients with… Read More

State Report Card to Help People with Rare Diseases

Written by Jennifer Huron on December 13, 2016

rareactionnetworkWashington, D.C., December 13, 2016—A majority of states are not measuring up on legislative solutions that reduce the burden of rare diseases affecting 30 million Americans, according to a new report released today by the National Organization for Rare Disorders… Read More