To Top

Archives for: September 4th, 2013

Even “Well Known” Rare Diseases Pose Diagnosis Problems

Written by Mary Dunkle on September 4, 2013

Even though Gaucher disease is one of the better known rare diseases and diagnostic testing is available, some patients still go for 10 years or longer without getting an accurate diagnosis after symptoms first appear. (more…)

#ShowYourStripes pic for #RareDiseaseDay! Proud to be working w/ @RareDiseases on a data and analytics platfor…
  • RT @JossStone: Today is #RareDiseaseDay ! We visited @nclStiftung in Germany who do an amazing job in promoting research for children with…
  • Today is #RareDiseaseDay! Don't forget to #ShowYourStripes today to show support for the 25+ million individuals wi…
  • RT @RareAction: Thank you Georgia #RareAction for coming out to support #RareDiseaseDay! @RareDiseases #ShowYourStripes