Written by Jennifer Huron on November 28, 2017
Patients speak out as Congress moves forward with a tax bill that would negatively impact individuals with rare diseases
Washington, D.C., November 28, 2017 – Today, the National Organization for Rare Disorders (NORD) is hosting a Save the Orphan Drug Tax Credit Rally for the rare disease community in… Read More
Written by Jennifer Huron on March 15, 2017
Washington, D.C., March 15, 2017—The National Organization for Rare Disorders (NORD) today announced the people, organizations, and innovators who will be honored at the 2017 Rare Impact Awards on May 18 in Washington, D.C.
The Rare Impact Awards is a… Read More
Written by Jennifer Huron on March 2, 2017
Washington, D.C., March 2, 2017—On Thursday, May 18, nationally touring musical artist Gaelynn Lea will perform at the Rare Impact Awards ceremony in Washington, D.C. In 2016, Gaelynn Lea was named the winner of NPR Music’s second-ever Tiny Desk Contest. Her music video entry rose to the top of over… Read More