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Archives for: July 14th, 2016

NORD Issues Statement as Senate Postpones Vote on Cures Legislation

Written by Jennifer Huron on July 14, 2016

The following statement was issued by Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), as the Senate announced it would not vote on its Cures legislation, also known as the Senate Innovations for Healthier Americans Initiative, until September at the very earliest.

“On behalf of… Read More

Today, Tell Congress We Need #CuresNow

Written by Christina Jensen on June 7, 2016
HDR_PolicyAlert_2
Today, June 7, join rare disease advocates around the country and tell your Senators to support the Senate Cures Legislation. This month is the last chance for Senate Cures to pass before the Senate is out of session until after the November election.
Senate… Read More