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Archives for: November 19th, 2018

Orphan Drug Act Resolution Introduced in Congress

Written by Christina Jensen on November 19, 2018

Senator Hatch and Representatives Lance and Butterfield introduced a resolution that heralds the success of the Orphan Drug Act (ODA) and calls for continued support of the legislation.

This year marks the 35th anniversary for the ODA. That means 35 years of increased hope and treatments for the rare disease community…. Read More

NORD Issues Statement in Response to Congressional Consideration of the Tax Cuts and Jobs Act Conference Report

Written by Christina Jensen on December 18, 2017

Washington, D.C., December 18, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in response to the upcoming congressional consideration of the Tax Cuts and Jobs Act Conference Report:

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Eleven Major Patient Groups Outline Joint Position on Health Care Reform

Written by Jennifer Huron on March 6, 2017

Washington, D.C., March 6, 2017 – A coalition of eleven nonpartisan patient groups today laid out a joint set of goals they want Congress to focus on as it considers changes to the Affordable Care Act. The coalition includes these organizations: American Cancer Society Cancer Action Network, American Diabetes Association,… Read More