Protecting Your Healthcare Coverage
Written by Lisa Sencen on September 26, 2017
The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.
Before the Affordable Care Act was enacted in 2010, rare disease patients faced discriminatory insurance practices due to their pre-existing condition. Patients… Read More
NORD Publishes New Rare Disease Report on Shprintzen Goldberg Syndrome (SGS)
Written by Lisa Sencen on September 12, 2017
Washington, D.C., September 15, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Shprintzen Goldberg Syndrome (SGS). This new resource is available free online to individuals around the world.
As the primary advocacy organization… Read More