Written by Valaree DonFrancesco on February 22, 2021
Tristan Lee, a 37-year-old Pennsylvania man who has lived with sickle cell disease since birth, is a patient advocate with Sickle Cell Disease Association of America, a NORD member organization. Today, Tristan shares his personal story for Rare Disease Day with WebMD, with information about NORD noted at the end… Read More
Written by Valaree DonFrancesco on June 19, 2020
At the head of the herd is… Beverley Francis-Gibson, President and Chief Executive Officer, Sickle Cell Disease Association of America
Beverley advocates for those living with… sickle cell disease.
How Beverley got here…
I started working at SCDAA in 2018 because of my personal connection to sickle cell disease. I have a… Read More