Written by Laura Mullen on November 12, 2019
I attended the NORD 2019 Summit in Washington, DC a few weeks ago. It was my first chance to attend this conference organized by the National Organization for Rare Disorders and, admittedly, the first time I considered going. I had the impression that NORD was a policy and advocacy… Read More
Written by Laura Mullen on June 20, 2018
*The following article ran 6/19/2018 via Pennsylvania Legislative Services, an online legislative research, tracking, media, and analysis service providing access to Pennsylvania’s policy making process.
SUPPORTERS, LAWMAKERS CELEBRATE RARE DISEASE AWARENESS DAY
By Derek Snyder, Pennsylvania Legislative Services | June 19, 2018
Dozens of advocates joined… Read More