Written by Lisa Sencen on January 8, 2019
Each year on the last day of February, the rare disease community comes together on Rare Disease Day to raise awareness for millions of people who are impacted by rare diseases.
This year’s Rare Disease Day is just 51 days away! As the Official… Read More
Written by Lisa Sencen on March 7, 2018
Thank you to our rare disease partners and every person who worked to heighten awareness on Rare Disease Day® in 2018. On this day, everyone comes together globally to bring attention to all 7,000 rare diseases that combined affect 30… Read More
Written by Jennifer Huron on February 29, 2016
On this day, join the 30 million Americans who are making the voice of rare diseases heard. Your participation on Rare Disease Day means more awareness and hope for 1 in 10 people and families across the country, and others… Read More