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Archives for: October 27th, 2015

Taking on NYC and a Rare Disease: An Introduction

Written by Sophia Hanson on October 27, 2015


Sophia Hanson is a college student and has the rare disease, Lymphedema.  She is writing for NORD about the balancing act of going to college, moving away from home, and managing a rare disease.


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2015 Portraits of Courage Honoree, Sophia Hanson

Written by Jennifer Huron on May 2, 2015

At the age of 15, Sophia Hanson was attending boarding school in Chicago at Lake Forest Academy.  She loved running for the cross-country team, where she would run up to six miles a day and compete on a regular basis, pushing her body to extraordinary limits.

Now at 18 years old,… Read More