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Archives for: May 20th, 2019

Donna Appell, R.N.: 2019 Rare Impact Award Honoree

Written by Lisa Sencen on May 20, 2019

When Donna Appell’s one-year-old daughter Ashley exhibited frequent and unexplainable bruising, Donna turned to her toddler’s pediatrician for answers. She was told that the bruising was “easier to see” because of Ashley’s albinism. After leaving the pediatrician feeling patronized, Donna sought answers herself, learned about a rare bleeding… Read More

NORD Announces Honorees for 2019 Rare Impact Awards

Written by Lisa Sencen on March 12, 2019

Washington, DC, March 12, 2019—The National Organization for Rare Disorders (NORD) today announced the individuals, organizations and industry innovators who will be honored for their outstanding work in support of the rare disease community at this year’s Rare Impact Awards on June 22.

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