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Archives for: February 29th, 2016

Today is Rare Disease Day®

Written by Jennifer Huron on February 29, 2016

rdd-social-profileOn this day, join the 30 million Americans who are making the voice of rare diseases heard. Your participation on Rare Disease Day means more awareness and hope for 1 in 10 people and families across the country, and others… Read More

Alabama Rare Disease Day State House Event

Written by Lisa Sencen on February 25, 2016

Rare disease advocates have joined with the National Organization for Rare Disorders (NORD), the national sponsor of Rare Disease Day in the US, to organize this special event for legislators, legislative staff, the public and the media.

The purpose of this event is to raise awareness at the state level for… Read More

Raise Your Voice: Rare Disease Day 2016 is Coming

Written by Jennifer Huron on October 12, 2015

Rare Disease Day Handprints Across America

Date: February 29, 2016
Global Theme: Patient Voice
Global Slogan: Join us in making the voice of rare diseases heard

By definition, each rare disease affects a small segment of the population, yet combined the… Read More